Pseudomonas is a B*tch

It's been quite the fiasco recently with this infection and I think I've nailed it. I've been having these exacerbations back to back for a few months now. Each time I'm put on Prednisone (with out an antibiotic), opens up my airways, wean off the Prednisone, and we're back at square one.

It's been driving me absolutely insane I have to admit. I'm not one to let myself getted bogged down with health stuff and be all negative, but I wanted answers. So I sat down and thought to myself, what the heck have I done differently in the last several years? Because certainly something has changed. Let's face it, yes I know with CF there may come a time when these exacerbations will hit and I won't have an answer, but I'm not there and I KNOW it.

So after many hours on and off I think I got it figured out! I basically stopped TOBI recently! Bam, that's it! I should've known better since I've actually been able to taste the infection/Pseudomonas. Since TOBI is only every other month, there's 2 months out of this period without TOBI or anything to fight off the lovely Psuedomanas. (Colisitin was the alternate on the other months, but it inflames my airways) Then when I was my TOBI month I weaned way back because I was completely losing my voice. I went to 1x every other day. Dumb move, because clearly nothing has been in there effectively for 3 months time. My lungs have been a playground for the PA to enjoy. Not cool.

So I called Hopkins told them all this and they agreed which felt great. So I'm back on TOBI whether I lose my voice or not again, I don't care. This was a tough lesson to learn, but I'd rather lose my voice then my mind again.

I'm also happy to say that my FEV1 is back up beyond baseline!! *Jumps for joy!*