Fall is my absolute favorite season! I look forward to it all year long and really try to enjoy each and every day. We've had an eventful Fall thus far...
I had my Picc line in for 3 weeks which made me feel great!
Poor Scott got a nasty cold and was sick for over a week..
He then passed it to his lovely wife (ahem, me) and I'm anxiously awaiting it's departure ;)
We went to our local Renaissance festival and ate our hearts out
We have went to several Fall festivals in our area
Drank countless glasses of hot apple cider
Picked apples at an orchard
Went on a Hayride with my nieces
Tried apple fritters for the first time (YUM!)
Picked pumpkins off the vine at a pumpkin patch
Went to our favorite yard sale fall festival about an hour away and cleaned up
Made a few loaves of pumpkin bread
Enjoyed a band at our favorite local winery
Dressing up for Halloween!!
Saturday, October 29, 2011
Fall is my absolute favorite season! I look forward to it all year long and really try to enjoy each and every day. We've had an eventful Fall thus far...
Saturday, October 15, 2011
Yikes, for the life of me my blog has NOT let me sign in for about 2 weeks now. I've racked my brain for reasons why, but for some reason today it let me sign in. Great! It hasn't let me comment on other blogs either, so I do apologize for that. I have to say I'd just sit here and hit "Comment" after "Comment" and nothing. Here's hoping she's all fixed now :)
A lot has happened lately, so in my true to slacker-not-able-to-log-in-fashion, It's a list on the blog type of day..
-For starters the Picc is gone! Yay! It was removed yesterday at work, which was exactly 3 weeks from placement. Feeling good and hoping things continue in that direction.
-Our CF community lost a very near a dear person to me recently. Nicole lost her battle as did her little boy. It's been very difficult lately thinking about her and everything that happened. She is on my mind so very much.
-I officially entered the world of CFRD on August 30th. Been feeling it for a while now, so we decided I needed to keep track of my sugars. Sure enough I landed myself on a carb counting adventure with the help of a Novalog insulin pen. Her name is "Penny." ;)
-I've been trying very hard to enjoy every moment of my most favorite season, FALL! We went to a pumpkin patch, apple orchard, did a hay ride, and have been to 2 Fall festivals. Love this!
-I ran the 2nd annual "Out Run CF" race. I chose to do a 5K with the picc line in tow. It went well and I was so happy to have been able to do it.
-I've recently begun to start "couponing." Not crazy hoarding or anything, just watching for deals on the things that we actually need. So far so VERY good! It's pretty cool to see all the $ we can save.
-Being the crazy person I am, I've started getting some early Christmas shopping done. I've gotten all of my nieces and both of my Goddaughters finished already. Definitely a good feeling :D
-I continue to run at least 4 days a week and love it. There just isn't anything else that makes me feel so great.
That's it for now. Just coming off of IV's yesterday has officially made me feel like I've been hit by a mack truck. I can't remember the last time I felt this exhausted, or slept so deep. Shew. Back to relaxing :)
Saturday, September 24, 2011
Wednesday, September 14, 2011
I started my day out with a lovely colonoscopy today. What a breeze! The worst part is definitely the day before being allowed only clear liquids since this girl LOVES to eat. The prep wasn't even a big deal. I did Miralax and Gatorade and since I like Gatorade and drink it frequently it was a piece of cake...ohh cake. Sorry side tracked ;)
I had to have the colonoscopy due to my history of bowel obstructions in the last 2 years. I had intussusception when I obstruced the last 2 times. So to be safe we did the procedure to make sure there wasn't something in there causing it (ex: Mass, huge polyp, lipoma, etc).
Good new is, no bad news. I did have 2 "tiny" polyps, so no biggie. I'll follow up with the doctor in about 2 weeks and we'll go from there. It was a great experience if I do say so myself. The sedation (Propofol) is wonderful! You literally fall asleep, and wake up in recovery. It doesn't get much better than that.
Being a GI nurse who does this all day long, I knew what to expect. In fact, I totally felt like I was a work. I was even taken care of by a nurse I went to nursing school with. Of course, it still makes you nervous, but I think that was because I was afraid something was going on in there. So overall, good day, great nap, good results :)
Friday, September 9, 2011
Saturday, July 30, 2011
Monday, July 25, 2011
Saturday, July 23, 2011
Monday, July 11, 2011
Friday, July 1, 2011
Sunday, June 26, 2011
Friday, June 24, 2011
Wednesday, June 22, 2011
Monday, June 20, 2011
Monday, June 13, 2011
Saturday, June 11, 2011
Tuesday, June 7, 2011
I ended up getting in 2 doses of Bactrim yesterday and already see an improvement! Very very happy about this. I also decided to go to the gym today to see how I did. I'm SO happy that I decided to go. I coughed up a lot of stuff that's been lurking in there and feel great. I did 2 miles total on my lunch break today.
Let's hope we continue on the "Up and Up"
Sunday, June 5, 2011
Friday, June 3, 2011
Monday, May 30, 2011
Saturday, May 28, 2011
Sunday, May 22, 2011
After the 1 mile Special Olympics benefit race
After the 5K with my shadow, my Greyhound Hooper :)
Saturday, May 21, 2011
Monday, March 21, 2011
Making my way to 3.1 miles!
Tuesday, March 15, 2011
I knew my tolerance would be lower, and it was, but surprisingly not by much. I was very happy about that. There's not much more to say other than It felt great and I can't wait to go back tomorrow! Today's accomplishment was 35 minutes, totalling 2 miles.
It's so nice to feel like me again :)
Monday, March 14, 2011
On February 14th I was admitted to the hospital and tested positive for the flu. I had no idea how bad it would get. One month later, March 14th I am IV free as of 9:30 am!! Goodbye to Mr. Jugular line, and thank you for getting me back to being me again. I was terrified that I may not see that again. I still have a little ways to go (not much) but I'm working very hard and my FEV1 is getting back to baseline. Tomorrow, for the first time in a month I am going running!!! Ahhhhhhhh!!!! So excited!
I am BEYOND words of gratefulness!!!!
Thursday, March 10, 2011
Last week I had a follow up appointment at Hopkins and I knew it wasn't going to be great. It was only 2 weeks post flu, and they said it would take a while to feel better. So, no real surprise but still disappointing. My IV meds weren't really doing the trick, so we did a little switch-a-roo ;)
I'm happy to report that it's working!!!! I feel a ton better and couldn't be happier. Yes, I still have work to do to get back to baseline, but I will do it! I've already been back to the gym and on the treadmill. I'm only walking for now since I don't want to over do it, but my plan is to be back to running by next week. I miss running so much and know my lungs will be happy with me exercising again. It's been like nails on a chalk board for me not to be active at the gym.
So that brings me to today. My CF Nurse called me to check on me and see what our plan is going to be. We decided to do my antibiotics through the weekend (fine with me) and....DRUM ROLL PLEASE......Remove the Jugular IV on Monday @ 10 am!!! WOO HOO!!!! Best news I've heard all month long!!! Could this flu/exacerbation be hitting the road?? I think so! ;)
Monday, February 28, 2011
Getting up this morning was a little rough and I was afraid it was going to be too much. But then again, any morning lung wise for me is the worst time of day. So I took my time and crept along at a snails pace and got to work.
It was so great to see everyone and was even a little bit emotional. This flu and virus stuff really knocked me down to the lowest I've ever felt. I think the fact that I even got in the SUV and drove today was monumental.
Overall I'm tired, but don't regret it at all. The doctor's cleared me today to go back at light duty and I'll do just that. Hoping that each day only gets easier from here on out. I still have a long way to go, but I'll take these baby steps for sure.
Now on to doing a whole lot of nothing for the rest of the day and night.
Friday, February 25, 2011
In the middle of that night, I woke up at 3am with a fever of 101. I RARELY get fevers, so again I knew something was up and I wasn't liking it. I spent the next 2 days in bed, just praying and hoping I would be sick on my birthday (the 12th).
As it turned out by Friday I felt pretty darn good. Prayers answered and I was thrilled! So we spent my birthday very low key, and ended up going to the movies and bowling. By the time that evening hit, both Scott and I felt sick as dogs....again. And the next day, it just progressed even worse.
Monday came, and I knew I had to make the dreadful call to Hopkins because this was not getting better, but getting worse, and scary. My FEV1 took a sudden hit which scared me and hasn't ever happened before. I made the call and they wanted me in immediately as a direct admission. I knew it was the right thing to do, but still I hated it.
By the time we got to the hospital I was so short of breath, that It burned for me to even walk a few steps. We had to walk a long way to get to where we needed to go, and not to mention the 2 escalators were broken. Awesome. When I coughed, my chest hurt so bad that it felt as if chards of glass were coming up. I can't think of any other way to describe it.
I just layed there and cried. What the heck is going on with me!? The Nurse came in and did all the paperwork, so many vials of blood drawn, blood cultures, swabs, you name it, I was probed. Later that night I was told that I tested positive for Influlenza A. Wow, no joke, this flu is serious business.
So I was in Hopkins for 4 days, slowlyyyyyy feeling better, but barely. I was discharged home on Thursday. I thought things were getting better and then on Monday my PICC line started to really hurt, and my fevers came back yet again. Called Hopkins and was told to pack a bag again since I'd probably get re-admitted for a new PICC insertion. Blah!
Turns out I didn't need to get re-admitted. The Nurses set me up for an outpatient PICC the next morning. That turned into a huge nightmare. I should've spoken up because I just didn't feel confident in the resident at all. It's like I knew he wasn't going to do it. Sure enough I woke up after conscious sedation I had 4 holes in my left arm, and a new line in my neck. Good thing is, is that it works, but it sure is not comfortable. At this point, I'll take what I can get.
So here I am, thinking that I may actually start feeling better. My lungs are still the tightest they have ever been which I don't like. Good news is that apparently with the flu this is normal. They said this could take weeks before my lungs bounce back. Not the greatest news, but as long as they do I'll be happy.
Despite how awful things have been most of this month, I am still beyond grateful for the love and support so many people have shown. I've gotten so many sweet messages, texts, videos, care packages, calls, cards, flowers, and snacks! It's a wonderful thing to have such loving people in my life.
Hands down I give all the credit in the world to Scott for being a wonderful husband to me. He's had to juggle work, school, and me which has been so overwhelming. I couldn't ask for a better partner in my life and am thankful for all he does.
Thank you everyone who's been there sending well wishes. They sure are appreciated!!
Sunday, January 30, 2011
Tuesday, January 25, 2011
I hate this. I hate this so much. I don't know any other word to use to attempt to describe it. Infinite tears have been shed, and I know It's not the end of them either. It's just not fair. I won't ask "Why" but I can't help but wonder....WHY!?
I've contemplated taking a break from the CF forums, and even from Facebook. But then I wonder, am I running away from this? I don't know. I love, and I really mean this when I say it...I love the relationships and the friendships that I've made over the years with my fellow CF'ers. It's times like these though, when I feel like I can't do this, I can't watch this sadness around me. I can't watch people lose their lives with the disease that I have. I can't stand to feel helpless and just watch this sorrow. This is a dark place.
Last night I just couldn't shake the feeling of just not wanting to be alone and scared. Scott is back to school, but I just could not sit in this house alone. So I turned a lot of negatives into positives. I went up to the gym last night with my best friend and stayed on the treadmill for 50 minutes. Infact, I did a 5K. Take that CF!
Missing Geneva, Tom, and Tina.
Sunday, January 16, 2011
Despite my accident prone week, I managed to survive ice skating today. Granted, I've never had any problem ice skating, but given my track record this week I had the helmet and bubble wrap ready ;)
All in all it was a great weekend of friends, family, food, fun, and football. It doesn't get much better than that!
My nephew and I skating :)
Saturday, January 15, 2011
As I mentioned earlier this week I ended up at the doctor due to my rub/muscle pains. I'm still taking Tylenol and Ibuprofen around the clock. Sure I feel better with the meds, but during the night not so much.
So as if that weren't enough I added more injury yesterday. It's so ridiculous that I have to laugh. Problem is, the laughing turns to coughing, and the coughing kills the ribs. Alas, I'm a laugher and always will be so I'll just splint and continue to crack up.
Yesterday I stopped at Target to purchase a "fitness ball." I thought It would be something good to do perhaps in the evening, especially to work on the abs. Yes they have these at the gym, but I figured I'd just pick one up in addition. Well brain-iac that I am sat on it without shoes, mistake #1. Then decided to lie back on it and see how my injured back did on it, enter mistake #2. Well soon after leaning back on the ball, my socks were slipping on the hard wood floor. I lost control of my feet, and fell over. Doesn't sound too bad right? lol. Well I fell on my right side (because you know, I wouldn't want to hurt the left side that's already messed up). Sheesh. The right sided fall flipped me over, hit my head on my desk chair, scraped my elbow along a rug (hello rug burn) then landed on a huge vein in my arm which immediately turned black and lumpy. All I can say is what a dummy, oh and ouch.
I run to the freezer, wait I trotted limp-like to the freezer, yeah that's more like it. I grab a bag of brussel sprouts and iced the elbow area. It was pretty gross, swollen, and turning black. For a second I thought I'd broken my arm the way it had twisted.
So I took my regulary scheduled Ibuprofen/Tylenol combo. Only this time It had double work to do. Fix the rib/mucles, oh and the added swollen black elbow and arm. This morning I woke up after not sleeping too well because every move I made was followed by @#$%*#&! ouch!!! haha.
When I got out of bed today I hadn't realized how this fall had hurt my knee. I'm suddenly realizing how much I sound/feel like a 90 year old lady. But It's true, my body is aching today. Perhaps I'll put myself in a protective bubble, and strap a helmet on with a chin strap. Sounds like a plan to me ;)
On a happy note, I still made it to the gym 4 days this week despite this stuff. And I got in a little over 6 miles.
Here's to a non-injured weekend...GO RAVENS!!
Tuesday, January 11, 2011
Today's run according to my plan was for 30 minutes. I ended up running 2.5 miles today!! I was really pushing to get to that 3rd mile, but my feet were hurting so bad. Side note-I'm over due for getting new running shoes. Must get new ones, like now :)
Here's the embarrassing part. I have my IPOD on shuffle and was rocking out to, well, rock. During shuffle "A-Ha's" song "Take on Me" comes on and I got pumped. Yes yes I'm a HUGE 80's music lover! Anyway I was so digging the song I didn't realize I was singing it outload on the treadmill. Yup! I was THAT person today. Let's just say that I was happy to be done my workout at that point ;)
Overall It was a great run and I felt awesome afterwards. Maybe It was the fact that It was snowing outside and I felt super excited, like a little kid?
Monday, January 10, 2011
I went into work and got the opinion of one of our Anesthesiologists. Turns out he just scared the you know what out of me because "well normally I'd say It's musculoskeletal...however with your Cystic Fibrosis you'd better get checked out." Rats! But being the good, overly worried patient that I am I obeyed his request.
I went to our local "Patient First" center and they were great as usual when I've been in the past. It's quick, no appointment, and It costs me all of $5 with our insurance. Awesome.
They wanted to make sure I didn't have a PE (Pulmonary Embolism), Infection, or Pneumonia eventhough I don't have those symptoms. Better safe than sorry, and I'm all for ruling out. So we agreed I have a severe muscle pull that they had to give me Flexaril. Yikes. I've never taken this before, but I was told It's either going to make me mega loopy and/or knock me out.
At this point I just want the pain to go away. I'm not a huge fan of it hurting when I breathe. It's like awful rib pain on Inspiration, not cool. Luckily a change in position and the pain goes away for the most part. Now If I could just sit or lay comfortably and we'd be great ;) Here's to the meds working!
Sunday, January 9, 2011
Wednesday, January 5, 2011
What was your deal today at the gym anyway? Really? I can't believe how you behaved once we walked in the door. Did you think it was appropriate to throw a tantrum like that and cause a stir? Why did you wait to start draining and make me cough my head off for 25 minutes during my run?! If you would have acted up earlier in the day I could have calmed you down much easier. You really put me in a predicament today just so you know. What, were you just jealous because I was running so you wanted to run as well!? How dare you try to cut my run short today. I hope you realized that you WILL NOT cut my run short, and I will win this! Bwah ha ha!
I want answers! ;) Ok ok, fine, be like that. Try as you may little rotten sinuses of mine to interfere with my exercise and running. Go ahead, you will see who will win every time. What, was today not proof enough!? Go ahead try me again and see what happens! You're going down!
Tuesday, January 4, 2011
My Half Marathon Plan, check it out ;)
Monday, January 3, 2011
Today I started a new running plan to really challenge myself. To me It's intimidating, but I won't give up. It's a pretty great 1/2 marathon plan that actually looked doable and not completely scary, haha. I'm ready for it!!
Here's to the completion of day 1 which required 30 minutes (Run 1 min/walk 1 min) which for me was 2 miles. Feeling great and looking forward to the challenge!
Sunday, January 2, 2011
Today my best friend and I headed out to celebrate Christmas together. We exchanged gifts then headed out for coffees and manicures. It was pretty sweet to sit there and have someone massage your hands and arms while making your rough old hands look oh so pretty ;) We then went out to lunch, and did a little shopping. Looking back I'm thinking to myself, I don't think the first weekend of the new year could have been any better. I am so blessed.
Tonight It's back to reality as work is tomorrow. However I'm going to enjoy these final few hours of my mini break parked in front of the fireplace watching football. There's no place I'd rather be tonight then here with my husband and pups. Happy New Year all!