That's It I'm DONE!

Colistin has finally beaten me. I've tried every single trick I know on how to deal with the inflammation and these awful side effects. Last night was the final straw for me.

I noticed at work that I was feeling REALLY short of breath and overall like I'd been hit by a truck. So when I got home I did my FEV1 monitor and realized, my #'s had dropped about 15%!!!!! No wonder I was having a difficult time :( I took it upon myself to stop it (don't worry Hopkins will be made aware). I just can't keep doing this every other month and hurting my brain trying to work something out.

I think part of the problem is that I'm so used to being on an inhaled antibiotic ALL THE TIME that I think I need it. Maybe not. I'm so open to trying new things, so that's what I'm going to do now.

For the next 2-3 weeks that I should have been on Colistin I'm going to see if it's ok to do this:
Hypertonic saline 2x/day
Pulmozyme 2x/day (if appropriate)
Hit the gym like usual so no gunk can settle.

I'm hoping my plan works, if not I'm not sure what we'll do since the last time I was on TOBI it was a sudden nightmare of side effects as well. I'm sure there are a lot of CF'ers out there who aren't on something every single month. I need to see experiment because for now it's Colistin-1, Jess-0.

Giving Colistin another try...

This morning I got up early and decided that yes I may be off work today, but I can't take a break from running. Instead of going to the gym I ran around my neighborhood. It was the perfect weather for it too, cool crispy fall-like in the low 70's, ahhhh. I did 2 miles in 28 minutes. I have to say I really feel a difference when running outside. I suppose it's all the hills that I don't have on the treadmill. I'm excited since I only have 5 more days until my 5K!

I'm giving Colistin another go. It has caused me some bronchospasms in the past, but I decided to see how I did this month. So far so good I must say. I think I have to realize that It does make my lungs tighter, but it's killing the bugs. My FEV1 meter shows a decline when I'm on it, but in the big picture the PA is having it's butt kicked so I should be happy. It's VERY easy for me to obsess over that little monitor. Heck if It's not preventing me from running It can't be that bad right? ;)

Moving on Up

Poor Scott was plagued by a horrible cold/virus on Friday. It was so bad that we actually had to pass on going to the Ravens game Saturday night. Ahem, to miss a football is a big deal you ask?! Oh yes it is in this house!! Poor guy had fevers, congestion, you name it, he had it. The whole weekend was spent resting and fighting this infection. Me, I spent it avoiding Scott like the plague unfortunately.

So far so good (Knock on wood!) I went to the gym today after taking a few days off last week due to my bowel obstruction I had last Monday. My body needed some rest, plus I'm not sure the pain I felt would've even let me attempt to run. Anyway feeling great and moving on.... I had a hard run and loved every bit of the 30 minutes it lasted. I realized today that my 5K is only 2 weeks away!!!

Today's Totals:

Ran 30 minutes

Total 2.1 miles

Pulse 165 max

Weight training: bicep routines

My FEV1 monitor is showing numbers that I REALLY like too! I gave Colistin another 'whirl' after stopping due to some side effects. I have to say, so far so great! Here's to more running, feeling good, and positive things this week!