Monday, March 21, 2011

Outrun CF!

I Outran CF on Sunday at the gym. I chose to do a 5K for my race. Overall I'm very happy with myself considering a few weeks ago I wasn't sure when I'd be able to run. It felt wonderful, and was great kick CF's rear by pounding that treadmill ;)

Getting ready to RUN!


Making my way to 3.1 miles!

Tuesday, March 15, 2011

The Treadmill and I reunite!

Today was a big day for me. It was the first time in nearly 5 weeks that I got to go running!!! I actually couldn't wait to get to the gym after work today and was watching the clock like a hawk. I was somewhat nervous since It's been a little while, but was just happy to be there and be able.

I knew my tolerance would be lower, and it was, but surprisingly not by much. I was very happy about that. There's not much more to say other than It felt great and I can't wait to go back tomorrow! Today's accomplishment was 35 minutes, totalling 2 miles.

It's so nice to feel like me again :)

Monday, March 14, 2011

One Month Later = :)

Here's a pic of the line...surprisingly a lot of people asked to see it. Gross eh? ;)

On February 14th I was admitted to the hospital and tested positive for the flu. I had no idea how bad it would get. One month later, March 14th I am IV free as of 9:30 am!! Goodbye to Mr. Jugular line, and thank you for getting me back to being me again. I was terrified that I may not see that again. I still have a little ways to go (not much) but I'm working very hard and my FEV1 is getting back to baseline. Tomorrow, for the first time in a month I am going running!!! Ahhhhhhhh!!!! So excited!

I am BEYOND words of gratefulness!!!!

Thursday, March 10, 2011

The best news I've heard in a month!

It's been quite an adventure these last few weeks to say the least. Each day is getting better and I think I can say I feel, well, GOOD!! So happy to be able to be functioning without feeling short of breath and like I'm struggling. It was no doubt, the sickest I have ever felt in my entire life. I don't think I've ever been so scared.

Last week I had a follow up appointment at Hopkins and I knew it wasn't going to be great. It was only 2 weeks post flu, and they said it would take a while to feel better. So, no real surprise but still disappointing. My IV meds weren't really doing the trick, so we did a little switch-a-roo ;)

I'm happy to report that it's working!!!! I feel a ton better and couldn't be happier. Yes, I still have work to do to get back to baseline, but I will do it! I've already been back to the gym and on the treadmill. I'm only walking for now since I don't want to over do it, but my plan is to be back to running by next week. I miss running so much and know my lungs will be happy with me exercising again. It's been like nails on a chalk board for me not to be active at the gym.

So that brings me to today. My CF Nurse called me to check on me and see what our plan is going to be. We decided to do my antibiotics through the weekend (fine with me) and....DRUM ROLL PLEASE......Remove the Jugular IV on Monday @ 10 am!!! WOO HOO!!!! Best news I've heard all month long!!! Could this flu/exacerbation be hitting the road?? I think so! ;)

Monday, February 28, 2011

Baby steps are still steps...

Today I took a rather large step and went back to work. Granted, I didn't work with patients, and just sat at my desk catching up on paperwork, but I did it and it felt great.

Getting up this morning was a little rough and I was afraid it was going to be too much. But then again, any morning lung wise for me is the worst time of day. So I took my time and crept along at a snails pace and got to work.

It was so great to see everyone and was even a little bit emotional. This flu and virus stuff really knocked me down to the lowest I've ever felt. I think the fact that I even got in the SUV and drove today was monumental.

Overall I'm tired, but don't regret it at all. The doctor's cleared me today to go back at light duty and I'll do just that. Hoping that each day only gets easier from here on out. I still have a long way to go, but I'll take these baby steps for sure.

Now on to doing a whole lot of nothing for the rest of the day and night.

Friday, February 25, 2011

Train Wreck, me.

There has been so much going on for a bit now, that I've just had zero energy or desire to blog. It all started a couple of weeks ago, Feb. 10th to be exact. I was driving home from dinner with a friend when I literally felt this illness hit me. Sudden onset of chills and shaking to the point of not warming up. I knew I was in trouble.

In the middle of that night, I woke up at 3am with a fever of 101. I RARELY get fevers, so again I knew something was up and I wasn't liking it. I spent the next 2 days in bed, just praying and hoping I would be sick on my birthday (the 12th).

As it turned out by Friday I felt pretty darn good. Prayers answered and I was thrilled! So we spent my birthday very low key, and ended up going to the movies and bowling. By the time that evening hit, both Scott and I felt sick as dogs....again. And the next day, it just progressed even worse.

Monday came, and I knew I had to make the dreadful call to Hopkins because this was not getting better, but getting worse, and scary. My FEV1 took a sudden hit which scared me and hasn't ever happened before. I made the call and they wanted me in immediately as a direct admission. I knew it was the right thing to do, but still I hated it.

By the time we got to the hospital I was so short of breath, that It burned for me to even walk a few steps. We had to walk a long way to get to where we needed to go, and not to mention the 2 escalators were broken. Awesome. When I coughed, my chest hurt so bad that it felt as if chards of glass were coming up. I can't think of any other way to describe it.

I just layed there and cried. What the heck is going on with me!? The Nurse came in and did all the paperwork, so many vials of blood drawn, blood cultures, swabs, you name it, I was probed. Later that night I was told that I tested positive for Influlenza A. Wow, no joke, this flu is serious business.

So I was in Hopkins for 4 days, slowlyyyyyy feeling better, but barely. I was discharged home on Thursday. I thought things were getting better and then on Monday my PICC line started to really hurt, and my fevers came back yet again. Called Hopkins and was told to pack a bag again since I'd probably get re-admitted for a new PICC insertion. Blah!

Turns out I didn't need to get re-admitted. The Nurses set me up for an outpatient PICC the next morning. That turned into a huge nightmare. I should've spoken up because I just didn't feel confident in the resident at all. It's like I knew he wasn't going to do it. Sure enough I woke up after conscious sedation I had 4 holes in my left arm, and a new line in my neck. Good thing is, is that it works, but it sure is not comfortable. At this point, I'll take what I can get.

So here I am, thinking that I may actually start feeling better. My lungs are still the tightest they have ever been which I don't like. Good news is that apparently with the flu this is normal. They said this could take weeks before my lungs bounce back. Not the greatest news, but as long as they do I'll be happy.

Despite how awful things have been most of this month, I am still beyond grateful for the love and support so many people have shown. I've gotten so many sweet messages, texts, videos, care packages, calls, cards, flowers, and snacks! It's a wonderful thing to have such loving people in my life.

Hands down I give all the credit in the world to Scott for being a wonderful husband to me. He's had to juggle work, school, and me which has been so overwhelming. I couldn't ask for a better partner in my life and am thankful for all he does.

Thank you everyone who's been there sending well wishes. They sure are appreciated!!

Sunday, January 30, 2011

10 miles

Luckily I'm pretty much always motivated to go to the gym and work out. Lately, with having such a loss in our CF community, It sort of upped my motivation. Granted I do have other reasons for this right now as well, however, moving on.I WILL work hard, I WILL stay positive, and I WILL keep going and not let CF get in my way.

This week I did over 10 miles at the gym. I am very pleased with this result. My rib pain/muscle pull is so much better which has helped in the exercise department. I spoke with my doctors and said that I needed alternatives to exercising with this pain. They said running wasn't especially smart right now, considering how much my your arms move while running. So I've chosen to do the stationary bike, and the Elliptical (minus the arms moving) as my exercise.

To kick It up a notch, I've increased the resistance, and done the "Cardio Mode" for both pieces of equipment. Holy sweat! It has been fabulous! I feel very satisfied, considering I can't run. Heck this might just be kicking my rear even more, and I couldn't be happier.